Now we start with speech therapy and after no progress I ask for a new therapist. When we get his new speech therapist she tells me he needs speech 5xs a week(which they would never approve) and be evaluated for other "issues". So now we have speech 4xs a week( because I have a BIG mouth) occupational therapy, a family trainer for me and another therapist to help in the classroom. As time goes by it was getting harder to have the patients level needed. In the womb my son was always active and in life he followed suit! He never stops. I love his spirit though and didnt want to loose that. As other mom's that traveled my same journey , this sounds all too familiar.
Months go by and he is still on the nebulizer(pulmicort and albuterol, or as I call is satan's drug) but slowly coming off all of all the other medications. Still struggling with his speech and behavior. Cringing anytime he got sick or allergies hightened knowing the weezing and sleepless coughing nights were coming! Now many more months have gone by and I see marked improvement in all areas and best of all NO more meds!! Unfortunetely still use the nebulizer but just for instant relief.
Now I am not going to bash medical doctors because I think the drs that care do the best they can. They have learned and are trained to use drugs to help people. Again not all are quick to perscribe but in the end ,that is their tool for treatment. Now I start to look further into things. Noah's(my son) new occupational therapist says to me after a few months "he really was all over the place today and we really couldnt get much done." So I start to think. Why was she saying this? Those are the words I heard daily from his last year teachers but never in the new year classroom or with the new OT(occupational therapist). I was told he needed consistancy, predictability and strong structure(they tell the "warden" as my hubby calls me). He constantly needed re direction. What changed now? Did he regress?? His services were decreased was he going backwards? Then a light bulb goes off. Noah was sick the week before and I had to give him albuterol(satan's drug). Hmmmmm. At home he wasnt the same kid and now his OT says the same things as last year. COULD it be the reaction to the meds??? Did this alter his personality so much that he was unable to function as expected? Now I start to think, maybe the wacky behavior wasnt a "defect" but a reaction to all the meds my son lived on for over a year? I call the dr and she says after a half hour it is out of their system and it has nothing to do with that. So why is my child cockoo for a week? Any parent you speak to will tell you the same. So upon a suggestion from another mom I ask about saline and xopanex. She gives it to me and I start using the saline at first sign of congestion in hopes it will break it up. As always it escalates no matter what naturl paths I take and now he cant stop coughing or breath. This is the ONE time I say give me the meds because it can become life or death. Reluctantly I give him the new broncial dialator and 5 minutes later he is talking a million miles a minute while riding his bike through the living room. BUT thankfully that 30 min thing did hold true with this new medication. This is how I became even more "crazy".
Months go by and he is still on the nebulizer(pulmicort and albuterol, or as I call is satan's drug) but slowly coming off all of all the other medications. Still struggling with his speech and behavior. Cringing anytime he got sick or allergies hightened knowing the weezing and sleepless coughing nights were coming! Now many more months have gone by and I see marked improvement in all areas and best of all NO more meds!! Unfortunetely still use the nebulizer but just for instant relief.
Now I am not going to bash medical doctors because I think the drs that care do the best they can. They have learned and are trained to use drugs to help people. Again not all are quick to perscribe but in the end ,that is their tool for treatment. Now I start to look further into things. Noah's(my son) new occupational therapist says to me after a few months "he really was all over the place today and we really couldnt get much done." So I start to think. Why was she saying this? Those are the words I heard daily from his last year teachers but never in the new year classroom or with the new OT(occupational therapist). I was told he needed consistancy, predictability and strong structure(they tell the "warden" as my hubby calls me). He constantly needed re direction. What changed now? Did he regress?? His services were decreased was he going backwards? Then a light bulb goes off. Noah was sick the week before and I had to give him albuterol(satan's drug). Hmmmmm. At home he wasnt the same kid and now his OT says the same things as last year. COULD it be the reaction to the meds??? Did this alter his personality so much that he was unable to function as expected? Now I start to think, maybe the wacky behavior wasnt a "defect" but a reaction to all the meds my son lived on for over a year? I call the dr and she says after a half hour it is out of their system and it has nothing to do with that. So why is my child cockoo for a week? Any parent you speak to will tell you the same. So upon a suggestion from another mom I ask about saline and xopanex. She gives it to me and I start using the saline at first sign of congestion in hopes it will break it up. As always it escalates no matter what naturl paths I take and now he cant stop coughing or breath. This is the ONE time I say give me the meds because it can become life or death. Reluctantly I give him the new broncial dialator and 5 minutes later he is talking a million miles a minute while riding his bike through the living room. BUT thankfully that 30 min thing did hold true with this new medication. This is how I became even more "crazy".